Mr. Goudas Events and News

Dec 3, 2016

Alzheimer dementia sad stories


 

Alzheimer dementia sad stories

Dear friends; you can be a man or a woman, any race, or nationality, you can be any gender, any sexual orientation, bisexual, transsexual, transgendered, etc, it will not make any damn difference at this point. God makes us all equal!

And this disease does not discriminate either!

Things have changed around because of religions, politics and all these bull shits around the world. 

The fact is there, is an enemy across us to wait there and attack you at the right moment.
 
If it was not for Mr. Alzheimer who discovered the disease one hundred years ago, it would be somebody else and what happen then and now is like a day and night.
Illness that can affect you, me, and anyone out there who may have read this article.

This awful disease is waiting to attack you. It does not matter if you won the gold medal in bodybuilding or you are the best runner or the best fiscal instructor in the world, or the most famous movie star or the best doctor.
In today’s environment, in Canada and in the US, South Africa, most of the parts of Europe, the disease is attacking more than ever.

Let me pause here for a moment to allow you to digest this now. 

Because I am not breaking happy news!

Let me take a deep breath because I need enough energy to continue this story despite the fact that I am one of the heaviest smokers on the planet, I have been smoking for over 65 years 3-4 packs a day. And up to now, thanks God, the last X-ray of my lungs revealed that they are still in good shape and despite my age, my health is in top shape.

Notwithstanding the fact that I have broken legs and back, floaters in my eye, extreme business problems, etc, etc I still contest my brain on a regular basis to be able to find the right word and provide you with the facts, the way they are as I see them without hiding behind the “bushes”.

In my narration, I am not going to incorporate any name of patients, doctors or pharmaceuticals. 

For that you have to use your common sense and I know you have the brains.

Because with Alzheimer’s, you will not be able to read what I am about to tell you.

Here are the facts: Let’s say that a man has some suspicions that his memory began to seriously deteriorate recently. My use of the masculine gender is only for the purpose of this article.
However, my writing addresses anybody.

So the suspicions increase to the point that it causes him to book an appointment to see the doctor, finally he is at the doctor’s office.

He explained the situation and the family doctor has no clue as to what happened to his brain.
He vaguely murmured maybe symptoms of Alzheimer’s disease. 

What is that? I asked. This is a disease where you forget everything and no body knows what causes this thing, but basically he can’t know for sure.

The family physician books an appointment for him to visit with a neurologist.
This takes a bit of time 2-3 months, even more sometime.
Within that time, many uncertainties come up, a horizon filled with sadness in his mind.

What is the solution, he is thinking, where am I going with this? Am I going to see a good doctor who can understand what’s happening to me and brings my life back?

In the mean time, should I quit my job and submit my resignation.

What will happen to my pension plan? Bank Account passwords that I am already starting to forget and I can’t remember if I wrote down somewhere my password for my safety deposit.
What if I lose my Id and forget even my name?

The words: “A disease where you forget everything” keep pounding in my head. 

Now I can’t remember where I put important documents.
I can’t even remember my PIN to use my bank debit or credit card.
I don’t know if I should be admitting to my wife that I have this terrible memory problem.
What if she abandons me?

Will I end up finding out that the marriage vows we made years ago are not standing?
What will become of “Till death do us part” will these words still stand the test of this disease?

At this stage in my life, no activity makes sense anymore, even watching the news on TV.
All I hear is more bad news about some terrorist that had blown up the subway in Paris because they promised him that if he completes his mission, he will he awarded with 60-70 virgins in some other life!

How the hell you can handle 70 women anyways when one woman is good enough to kill you?

Now let’s reverse the coins and this time around, the terrorist is a woman, what did they promise her after she completes the mission, anybody knows?
I am approaching the day when I will meet the Neurologist.

Meanwhile, I am now on the unemployment market, I can’t work, my appetite had dramatically decreased to become non existent.

I have no desire for eating or any other pleasure in life.
I have no desire for sex.
I am depressed, sad, fed up with life, hopeless and I do not feel like talking to or seeing people.
I start reading everything there is to know about Alzheimer Disease and dementia
Every article I am reading makes me more depressed and discouraged.

I looked at the photograph on the wall when I was younger. 

Very good looking graduated young man from a prestigious school.
As I was trying to explain this beautiful picture on the wall and thinking about the bright future that I have ahead of me, here I am alone in the room as I am fighting some tears coming down my face, because I knew sooner or later with this Alzheimer ordeal; I will not be able to remember who I am or recognize even my own portrait wondering who that might be?

I became more and more depressed with profound sadness.

I made my own conclusion I may not have to go to the neurologist after all.
What if I start urinating out of nowhere and wet my pants because I forgot to go to the washroom or I forget where the washroom is?
Or I locked myself outside and don’t know where the house key is or else I can’t remember where I put the car key? Maybe now, I should do everything I need to do because I still have a little bit of brain left before I lose it all up.

Anyway, finally the day of the appointment with the Neurologist arrived and here I am sitting across from the doctor who is apparently the authority in brain disorders

So he asked me to talk for a while and answer all kinds of questions about head injuries. Then he gave me paper to draw a clock and I tried to do the best I can.
I was able to draw a circle and I put the number 6 o’clock, the only damn problem is, I did not remember the date but I knew morning from afternoon.

I was anxious from the doctor’s expression. I am waiting for some response.
Apparently I barely passed this clock test.
Now another test arrived, to spell words backwards. I did not do well on that.

They ask me to do some calculus too.

Then came something that they wanted to test about my reflexes and muscle strength, and eye movement and this and that, and then they told me that further evaluations are necessary and they need to assess my mood I was never that moody to begin with.

If moody is a test, then everybody around me must have Alzheimer’s, then the Neurologist set me up for something described as brain imaging (They call it MRI) because they want to see if I don’t have some kind of tumor or cancer or water build-up in my brain or if I had all kinds of major or mini strokes in my head.
But before this MRI, I was sent to another office for some more testing.

I walked away completely devastated and fearful about this disease.

Then I went through the test to allow them to know if I can manage myself without help in daily activities. Then came another test: called: “The Montreal Cognition Test”. 

Then the fourth test arrived. This one is to assess electrical activities in the brain.
Obviously, for people with no brain, they passed this test without effort because there is already no electrical activity to begin with.

Now the doctor gives me a lot of homework to do.
He asked me to book an appointment to perform an MRI. 3 to 4 weeks later finally, the report came out and was sent directly to the doctor. It’s no point to give it to me because I cannot read it anyway. 

So the doctor has finally called me.
Although I am partially brain dead; I could still suspect that it’s not going to be happy news.

The day arrived and I am sitting in the office with the neurologist and he starts talking to me:

After assessing the situation, the neurologist explained that there are many possibilities and there are some brain damages in various parts of the brain, there have been brain cells lost, mini strokes were observed, cells have been damaged.
He mentioned about hippocampus, in the cortex, etc. Higher levels of the omega-3 fatty acids EPA and DHA tend to have larger brain volumes. But, he cautions, that doesn’t mean that the EPA and DHA cause higher brain volume need a clinical trial to prove that but it does point in the right direction. Natural product called Axona that it can help some people, but it definitely does not help everyone, and it can cause some severe gastrointestinal effects. is somewhat related to coconut oil and contains medium chain Bla Bla Bla.

At that point I wished to have Chinese translator to explain me what this is all about.
I wished to have my dog with me because he is the only being who can really understand the sadness in my heart.

Anyhow, the doctor continued with the assessment and in a casual manner, broke the Alzheimer’s news. He carried on by saying: It is unsure what causes it.

At that moment, I wanted to leave his office. He added. There’s more!

At that moment, I remember Clint Eastwood and I told him ”Come on Make my day”

And there is no cure, there is no way to stop the disease, but we can slow it down.

For how long can you do that?

There is no way to prevent the death of brain cells.

After receiving a bunch of prescribed expensive medications for all my symptoms, he gave me appointment for a follow up in 4 months.

I left his office traumatized by what just happened as if my head suddenly was totally invaded by the dreadful disease and the verification of that instead of going to the east end where my house is, I went to the west end.

Good thing that I have a bit of brain left and few dollars in my pocket to be able to make a phone call to my house by looking in my notebook since I did not remember the number.

Christopher Columbus’ mission to discover America was a piece of cake compared to my situation right now after all my energy on the way there to try to reveal my problem to my wife.
I was able to hide my illness to my wife and friends for sometime, but now I am on the dead end but I still have some courage so I can tell everybody about my symptoms and this is what I did when I arrived at home.
The Hiroshima and Nagasaki bombing were meaningless compared to the bomb I exploded in my house. Everybody was speechless and I finally realized that I am a patient of the worse disease the world has ever known. 

Everybody tried to encourage me by telling me I am just tired or maybe I should go to sleep or I need a lot of rest. I spent more time trying to understand the future the impact and the effects.
It was a night that I will try to remember.
It’s a crossword road decision to a path that I never face before.

What will happen to my family? Are they going to stick with me or they will dump me into some Alzheimer’s home. The future will tell. For them it will be the future.
For me it seems this is the end of my life.
I was constantly inside in my brain or may be what was left of that.
I was hearing the voice of the doctor repeating again and again the words uttered to me: “There is no cure for Alzheimer”: “There is no cure for Alzheimer”: “There is no cure, There is no cure”.

For the next little while, all I hear is I will lose my dignity, I will become aggressive, and paranoid, beating and slapping people, I will hear voices and drums constantly.

Questions and advice came right and left with everybody trying to be a doctor with me I became the topic of all conversations with my surroundings questioning me on: How this happened? When this happened? What’s the name of your doctor?  Maybe you should get another doctor? A second opinion? Maybe you should stop smoking I told them I don’t smoke. Maybe it’s the milk that you drunk? I told them I do not drink milk since my mother breastfed me. Maybe you should start drinking milk then? Stop drinking alcohol, but I never drink anything for twelve years, stop fooling around with women, Maybe your balls will fall off? Maybe you gamble too much? Maybe this maybe that, too many maybes...
How many doctors are in this world?
Needless to say: I was getting annoyed with this well-intentioned medical advice.

Then I realized I had to stop talking to people

I heard from someone there is nothing to worry because no one ever dies from Alzheimer’s disease he said, but you will die from other body complications.

Somebody else told me that AD can last from five to ten years, so now I know I have few more years to go.

I was trying to figure out if we can afford a caregiver, with no answer.
It is a terrible thing that happened up to this point since I can still think.

But I am fortunate I had the opportunity to talk to someone and explain to him in full details the event that happened up to now and the fear of the unknown sad future.

Please clik here for ( Alzheimer 1 )

 

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